This report emphasises registers and biobanks as research infrastructures for innovative research on health and welfare. It gives an overview of current knowledge on cross-border development of research that uses Nordic registers, biobanks and clinical studies, and includes suggestions for policy implications.
Ethical review, data protection and biomedical research in the Nordic countries – a legal perspective
The report gives an overview of the existing legislation in the Nordic countries regarding the collection and re-use of health-related personal data in medical research. It also looks at how ethical review is integrated in the regulatory frameworks, including in the European general data protection regulation that will come into force May 2018.
This leaflet presents a number of key findings from the Nordic Centre of Excellence and six research projects that made up the first phase of the Education for Tomorrow programme, 2013-2018.